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If you would like to contact any of these families, please e-mail Shellyd@bryanskidneypage.org.
ID:1
Child's Name:Bryan
Child's Age:11
Parent(s) Name(s):Shelly and Scott
Type of Transplant:Kidney, living related (donor mom)
Date of Transplant:June 17, 1997
Medical Center:Now seen at Children's Hospital, Seattle Washington; Transplant done at UCLA Medical Center, Los Angeles California; dialysis was monitored by Children's Hospital, Seattle, Washington; Born at University Hospital, Salt Lake City, Utah
Diagnosis:Kidney failure, hydronephrosis, bilateral renal dysplagia, level 5 vesicoureteral reflux and hypertrophic bladder due to posterior urethral valves (obstructive uropathy), Autism
Medications:Prograf 3mg 2x day, Rapamune 5mg 1x day, Prednisone 6mg 1x day, Ditropan 5mg 2x day, Fe-Tenic (iron) 150mg 2x day, Pepcid 20mg 1x day, Meletonin 5mg 1x day, children's vitamin with iron 1x day
Other Information:Bryan spent 4 years on peritoneal dilaysis, 3 weeks on hemo-dialysis. He's had the following surgeries: Vesicostomy, Pyelostomy and Ureterostomy, Nephrectomy, valves ablated, ureter tapered and reimplanted x2, PD cath placed x3, Bilateral hydroceles repaired, g-tube placed, Quintin cath placed, Kidney transplant. He's also had many procedures such as VCUGs, urodynamics, kidney biopsy, etc. He's had one lengthy episode of rejection in 2002, but it has been treated.
Residence:Billings, Montana, USA
Child's Birthdate:April 11, 1992




ID:2
Child's Name:Wooseok and Seunghyu
Child's Age:8 and 5
Parent(s) Name(s):Yewoon (mom) and Jaihyuk (dad)
Type of Transplant:Kidney
Date of Transplant:February 24, 2000; April 11, 2001
Medical Center:Yonsei Medical School, Severence Hospital
Diagnosis:Unknown but recessive hereditary kidney diseases
Medications:Wooseok: 75mg Neoral twice a day. 5mg alternative daily prednisone. Myranta. Seunghyun: 75mg Neoral twice a day. 5mg alternative daily prednisone. Mycostatin to prevent infection. Myranta.
Other Information:Both children spent time on hemodialysis before transplant.
Residence:Seoul, South Korea
Child's Birthdate:January 29, 1995; August 22, 1998




ID:3
Child's Name:Justine
Child's Age:14
Parent(s) Name(s):John and Loni
Type of Transplant:Kidney, living donor
Date of Transplant:June 23, 1999
Medical Center:Lucille Packard Children's Hospital at Stanford
Diagnosis:Juvenile nephronopthisis dx May 1, 1999
Medications:Prograf, Prednisone, Calcium, Macrodantin
Other Information:From California, younger brother - 11 with special learning needs, older sister - 17, neurotypical
Residence:-
Child's Birthdate:March 7, 1986




ID:4
Child's Name:Jonathan
Child's Age:17
Parent(s) Name(s):Andy and Erin
Type of Transplant:Kidney
Date of Transplant:June 18, 1999
Medical Center:Children's Hospital in New Orleans
Diagnosis:Bilateral renal dysplagia w/secondary bilateral reflux nephropathy
Medications:Prograf, Prednisone, rapamune and procardia
Other Information:-
Residence:-
Child's Birthdate:December 14, 1984




ID:5
Child's Name:Jessica
Child's Age:19 months
Parent(s) Name(s):Christy and Steven
Type of Transplant:Liver
Date of Transplant:January 19, 1999
Medical Center:-
Diagnosis:Biliary Atresia
Medications:Neoral, Prednisone, Batrim, PolyViSol
Other Information:Older sister - 8 year old Rhonda
Residence:-
Child's Birthdate:February 27, 1998




ID:6
Child's Name:Sanne
Child's Age:6
Parent(s) Name(s):Anette
Type of Transplant:Heart
Date of Transplant:February 4, 1998
Medical Center:-
Diagnosis:Dilated Cardiomyopathy
Medications:Imurel, Prograf, Prednisone
Other Information:-
Residence:-
Child's Birthdate:June 6, 1994




ID:7
Child's Name:Brandon
Child's Age:15
Parent(s) Name(s):Sharon and Calvin
Type of Transplant:Kidney
Date of Transplant:November 3, 1999
Medical Center:Indiana University Medical Center
Diagnosis:Bilateral Renal Dysplasia
Medications:Cellcept, Prograf, Prednisone, Septra, Aspirin, Adalat, Atenolol
Other Information:-
Residence:-
Child's Birthdate:June 4, 1985




ID:8
Child's Name:Alia Briean
Child's Age:9
Parent(s) Name(s):Mychelle, Stephen (divorced)
Type of Transplant:Kidney
Date of Transplant:October 20, 1998
Medical Center:Alberta Children's Hospital
Diagnosis:Autosomal recessive polycystic kidney disease and hepatic fibrosis
Medications:Cyclosporine, Azathioprine, Prednisone
Other Information:Prior to TX, Alia had portal caval shunt placed in as well as two central venous catheters (broviac). Last one removed Jan 5, 2000. Current issues include hyperlipidemia, brittle bones, and warts.
Residence:Calgary, Alberta
Child's Birthdate:July 3, 1991




ID:10
Child's Name:Brian
Child's Age:6
Parent(s) Name(s):Steve and Kay
Type of Transplant:Living related kidney (from dad)
Date of Transplant:May 23, 1997
Medical Center:Children's Hospital of Seattle Washington
Diagnosis:Renal Failure due to Posterior Urethral Valves
Medications:Cyclosporine, Prednisilone, Sirolimus, multi-vitamin
Other Information:Customized homeschool education. Has two older sisters. No rejection episodes. Creatnine creeping (.8-1.1) as of summer 2000 for no apparent reason.
Residence:Marysville, WA, USA
Child's Birthdate:August 8, 1994




ID:11
Child's Name:Kevin
Child's Age:3
Parent(s) Name(s):Lea and Brian
Type of Transplant:Living related kidney (dad)
Date of Transplant:August 28, 1998
Medical Center:Boston Children's Hospital
Diagnosis:Renal failure due to posterior urethral valves at birth
Medications:Cyclosporine, Prednisone, Mycophenalate, Multi-vitamin
Other Information:-
Residence:-
Child's Birthdate:May 7, 1997




ID:12
Child's Name:Lisa Joy
Child's Age:11
Parent(s) Name(s):Wendy and Peter
Type of Transplant:Kidney
Date of Transplant:April 26, 1995
Medical Center:Royal Children's, Melbourne, Australia
Diagnosis:born with one kidney at 10% function - no reason given
Medications:Cyclosporin,Mycophenolate, amoxil (for UTI)
Other Information: Lisa had ricketts until age 2 and "clicky hip which was fixed by "von rosen" body splint worn until 3months of age. She was transplanted at age 3 1/2 and so far only 2 rejection episodes. She loves to be active and has a twin sister, Sarah and a Puppy dog "patch".
Residence:Devonport tasmania australia
Child's Birthdate:october 9th, 1991




ID:13
Child's Name:Emily
Child's Age:3
Parent(s) Name(s):Katie and Mario
Type of Transplant:Waiting for kidney
Date of Transplant:-
Medical Center:Miami Childrens Hospital (tx will be at University of Miami/Jackson Memorial Hospital)
Diagnosis:Congenital Nephrotic Syndrome, specifically diffused Mensangial Sclerosis
Medications:Calcium carbonate, Bactrim, Nystatin, Bibitra, Iron, Synthroid, Rocaltrol, Aspirin, Epogen, Growth Hormone, Polyvisol
Other Information:twin brother, not affected
Residence:Miami, Florida, USA
Child's Birthdate:November 7, 1996




ID:14
Child's Name:Kendra Lynne
Child's Age:8
Parent(s) Name(s):Darren and Kay
Type of Transplant:Heart
Date of Transplant:March 30, 1992
Medical Center:TCH The Children's Hospital of Denver
Diagnosis:HLHS (Hypoplastic Left Heart Syndrome)
Medications:Neoral (also takes a number of nutritional suppliments)
Other Information:Kendra waited for two months from birth for her transplant. Spent another 8 months at TCH (The Children's Hospital in Denver, Colorado) due to serious respiratory complications - pleural effusions - several more surgeries, biopsies, chest tubes, ventilator most of the time, g-tube (for two years). Because of high doses of diuretics she has some slight hearing problems - mostly sensitivity to certain tones and loud noise. She is in special education at school with some developmental delays. We also do some alternative medicine in addition to her allopathic cardiac protocol.
Residence:Colorado Springs, Colorado
Child's Birthdate:February 1, 1992




ID:15
Child's Name:Quantell
Child's Age:10
Parent(s) Name(s):Pam
Type of Transplant:Waiting for liver
Date of Transplant:-
Medical Center:-
Diagnosis:Primary sclerosing cholangitis (the disease Walter Payton had)
Medications:Prednisone, Imuran, Actigall, methadone, noritryptyline, rotating antibiotics, four vitamin supplements
Other Information:Quantell has multiple preexisting conginitive and physical disabilities (FAS, BPD, reactive airway, attachment disorder, PDD with retardation, g-tube, AFOs, short-gut, etc.) He was dx with PSC in 1996 after being really sick for the preceeding two years (it's a rare disease so chasing the diagnosis took lost of time and lost of wrong turns)
Residence:-
Child's Birthdate:April 29, 1990




ID:16
Child's Name:Jon David
Child's Age:5
Parent(s) Name(s):David and Barbara
Type of Transplant:Heart
Date of Transplant:February 11, 1999
Medical Center:Tx at Primary Children's Hospital in Salt Lake City, Utah. Now at Children's National Hospital in DC
Diagnosis:Dialated Cardiomyopathy
Medications:Neoral, Imuran, Diltiazem, Magnesium (also takes CoQ10, a nutritional supplement)
Other Information:Jon was born with no known heart condition. When he was 3 3/4 years old, he became very ill. The Doctors thought it was just a virus until they did a chest xray and discovered an enlarged heart. We then went to the Children's hospital for an echocardiogram and discovered that Jon's heart was functioning at about 6%. For two months the Doctors tried to improve his condition with medications. On January 21, 1999 he was listed for a heart transplant. He was doing well considering how sick his heart was until February 6 when he was rushed down to ICU because they could not find a pulse. They were able to stablize him with medications and in the morning of February 10 he was actually sitting up and eating a popscicle. Later that day he crashed when they sedated him to replace his bad arterial line. He then was put on a ventilator and a balloon pump. All his organs were beginining to shut down. At 11:00 pm they told us they had a heart. The heart was large for Jon and the function was not very good, they thought it was because the donor's body was shutting down but they could not be sure that was the reason. Then they said they did not expect Jon to live through the night. Jon is doing great now. His last heart catherization showed no rejection.
Residence:-
Child's Birthdate:February 2, 1995




ID:17
Child's Name:Jack
Child's Age:7
Parent(s) Name(s):Jill and Rich
Type of Transplant:Liver
Date of Transplant:April 29, 1994; April 17, 1995; July 5, 1995
Medical Center:University of Chicago
Diagnosis:Biliary Atresia
Medications:Prograf
Other Information:Other dx inclued asthma, avascular necrosis (hip), severe hearing loss (requires hearing aids), migraines, multiple allergies to meds and blood, lactose intolerant, short stature
Residence:-
Child's Birthdate:July 9, 1993




ID:19
Child's Name:Nicholas
Child's Age:7
Parent(s) Name(s):Tony and Margaret
Type of Transplant:Kidney (from dad)
Date of Transplant:June 18, 2001
Medical Center:Childrens Memorial Hospital in Chicago
Diagnosis:Juvenile Nephronophthisis
Medications:rapamune, prograf, prednisone, cozar, norvasc,zantac, and singulair
Other Information:He was diagnosed in May of 1999 and his creatinine jumped significantly from April until August. His brother and sister are negitive for the disease.
Residence:-
Child's Birthdate:June 21, 1993




ID:20
Child's Name:Cami
Child's Age:20
Parent(s) Name(s):Toni
Type of Transplant:Liver
Date of Transplant:1995
Medical Center:-
Diagnosis:biliary atresia
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:21
Child's Name:Katelyn Rose
Child's Age:7
Parent(s) Name(s):Mary and David
Type of Transplant:Matched Unrelated Bone Marrow Transplant
Date of Transplant:May 7, 1999
Medical Center:-
Diagnosis:Aplastic Anemia and Secondary EBV Lymphoma
Medications:Folic Acid, Epogen and Procardia
Other Information:Katy was diagnosed with Severe Aplastic Anemia at age 4. SAA is an autoimmune bone marrow failure syndrome. She was kept alive with over 100 transfusions of packed red blood cells and platelets until her BMT in May 1999. Her new marrow came from a donor on the National Marrow Donor Program's registry. We have recently been allowed to contact him, and he is a wonderful and caring 40 year old man from Virginia. Katy has some remaining health issues, including post-transplant nephritis caused by radiation and high serum ferritin (iron stores) that are caused by the multiple transfusions. She also has a secondary autoimmune disorder called Evan's Syndrome, which causes her to make antibodies against her platelets and red cells at times. She has had one occurrence, and the disease was put in to remission with high dose prednisone. We are working to resolve these issues, and Katy appears to be doing well!
Residence:-
Child's Birthdate:June 26, 1993




ID:22
Child's Name:Jenna Lynne
Child's Age:14
Parent(s) Name(s):Lynne and Richard
Type of Transplant:Kidney
Date of Transplant:June 28, 2000
Medical Center:University of Wisconsin, Madison
Diagnosis:MPGN (membranoproliferative glomerulonephritis) type II
Medications:-
Other Information:Diagnosed January 1992, renal failure June 1993, On peritoneal dialysis until transplant. Siblings: Rion - 16, Jessica (identical twin), Luke - 11
Residence:Iowa City, Iowa, USA
Child's Birthdate:December 20, 1985




ID:23
Child's Name:Joey
Child's Age:5
Parent(s) Name(s):Kelli
Type of Transplant:Living related kidney (from mom)
Date of Transplant:February 21, 1997
Medical Center:Children's Seattle, Washington
Diagnosis:Congenital Nephrotic Syndrome; Post Transplant Lymphoproliferative Disease; brain damage and ADHD due to seizures; cortical vision impairment; cognitive impairment; adhd; grade 4 reflux of kidney
Medications:Prednisone, Acyclovir, Bactrim, Rocaltrol, Zyrtec. and Children's Vitamin with iron
Other Information:Joen has been on peritoneal dialysis and hemodialysis. He has had more surgery than I could imagine a child having (over 40). He has the most wonderful attitude and spirit!
Residence:-
Child's Birthdate:November 19, 1994




ID:25
Child's Name:Katie
Child's Age:2
Parent(s) Name(s):Dani and Jim
Type of Transplant:Kidney
Date of Transplant:July 20, 2000
Medical Center:Presyterian/St. Luke's Medical Center
Diagnosis:Bilateral polycystic renal dysplasia (congenital), hypothyroidism, pulmonary hypoplasia, failure to grow secondary to renal failure, hypertension, non-specific GI problems probably related to renal failure
Medications:prednisone(30 mg/day), cyclosporine(60 mg three times/day), nystatin (3 cc 4 times/day), acyclovir (140 mg three times/day), lactobacillus (1 capsule three times/day), septra (5 cc/day), norvasc (1.25 mg twice/day), folic acid (200 mcg/day), multivits with iron (1 cc/day), aspirin (81 mg/day), sodium bicarbonate (10 meq/day), magnesium sulfate (100 mg/day), zantac (30 mg twice/day), calcium carbonate (2cc/day), synthroid (37.5 mcg/day), tylenol (240 mg q 4-6 hours prn) **whew**
Other Information:peritoneal dialysis April 22, 1998 until July 19, 2000 Siblings: Linda, 15; Jessica, 12; David, 10
Residence:Denver Colorado, USA
Child's Birthdate:April 14, 1998




ID:26
Child's Name:Benjamin
Child's Age:11
Parent(s) Name(s):Thomas and Lisa
Type of Transplant:living related kidney (mom)
Date of Transplant:July 6, 1992
Medical Center:UNMC currently under NHS, Omaha Nebraska
Diagnosis:Hydronephrosis, thick walled bladder, posturetheralvalves, bilateral urterosomy. Put intake in (91)
Medications:Neoral, 100mg twice and day, 2mg predinose every other day, 650mg ferrous sulfate twice a day, docusate sodium ( stool softener), immurane 50mg at night, muli-vitamin, growth hormone, aspirin
Other Information:Ben is very heathly, small in stature, has 3 other sisters and most of all he is a little boy
Residence:-
Child's Birthdate:-




ID:30
Child's Name:Gavyn
Child's Age:2
Parent(s) Name(s):Jerry and Giselle
Type of Transplant:Kidney
Date of Transplant:April 15, 2001
Medical Center:UCLA, Los Angeles, California also is seen at Childrens Orange County
Diagnosis:Posterior Urethal Valves resulting in End Stage Renal Failure
Medications:Neoral cellcept pepcid norvasc prednisone iron
Other Information:We found out about Gavyns illness the day before he was born. He was delivered the following day after no amniotic fluid was found. I had an Emergency C-Section, when he was born he did well, even stayed with me for 24 hours then the roller coaster began. He was diagnosed with Kidney Failure and the Doctors were not very promising with his outcome. He had a Vesicostomy at 2 days old to help his Kidneys kick in, they finally did once his Creatnine jumped to 5.0. Slowly it came down over the first year and he did great. It has since been climbing again and we are now getting very close to a Kidney Transplant and praying for a good donor match. Gavyn is a special little miracle as all the kids are on this site!
Residence:Laguna Niguel, California, USA
Child's Birthdate:5-29-98




ID:31
Child's Name:Brandon
Child's Age:8
Parent(s) Name(s):Chris and Brande
Type of Transplant:small bowel and bone marrow
Date of Transplant:June 23, 1996
Medical Center:Childrens Hospital of Pittsburgh
Diagnosis:Total Colonic Aganglionosis (Short bowel syndrome due to Hirschsprung's Disease)
Medications:Prograf,Predisone,Rapamune,Mag OX,Sodium Bicarb,Lopermide, Bactrim,Vitiams, Pepcid, Lactobacillus ,(Prn meds Immitrex Shots,Motrin)
Other Information:Shortly after I was born, I became very sick and was placed in the Neonatal ICU. I had my first operation when I was 24 hours old. After spending two months in the Neonatal ICU, I was finally diagnosed with Total Colonic Aganglionosis (Short Bowel Syndrome due to Hirschsprung's Disease). This means that I am missing cells in my intestine and cannot absorb my food properly. I had to be fed intravenously and by a tube through my stomach. These intravenous feeds contains medicines that can damage your liver. I have a younger brother, Jonathan - 7.
Residence:Lavergne TN
Child's Birthdate:January 9, 1992




ID:32
Child's Name:Spencer
Child's Age:6 months
Parent(s) Name(s):Ellen & Chris
Type of Transplant:Heart
Date of Transplant:August 30, 2000
Medical Center:All Children's Hospital, St. Petersburg, Florida
Diagnosis:hypoplastic left heart s/p Norwood Stage1
Medications:-
Other Information:-
Residence:-
Child's Birthdate:June 3, 2000




ID:33
Child's Name:Damien
Child's Age:6
Parent(s) Name(s):Paige and Jason
Type of Transplant:Kidney
Date of Transplant:1/5/95
Medical Center:University of Minnesota
Diagnosis:Bi lateral Displasic Kidneys, Microcephally
Medications:Neoral 50mg tid, Azathioprine 50mg at night, Prednisone 4 mg daily, Bactrim 2.5 cc daily, Concerta 36 mg daily (ADHD)
Other Information:Damien was written off at birth by doctors. Creatine was 7.8 when I took him home. They told the hospice nurse it would be a couple of days. Three weeks later I brought him back and asked what to do next. Damien had a transplant 7 months later from his grandmother. All the other health problems they diagnosised at birth seem to have disappeared. Damien off course has some growth problems and some learning delays due to microcephally but in all other aspects is a normal little boy.
Residence:Clearwater, MN
Child's Birthdate:5/13/94




ID:34
Child's Name:Lindsay
Child's Age:11
Parent(s) Name(s):Lauren & Lanny
Type of Transplant: 2 Heart transplants
Date of Transplant:1992 and 2002
Medical Center:Texas Childrens in Houston,Texas
Diagnosis:Her primary diagnosis was asd,vsd,pulmonary and mitral atresia,hypoplasitc left ventrical ,transposistion of the great vessels the second transplant was due to coronary artery disease
Medications:Neoral,cellcept,zinc,nifedipine,coreg,magnesium,prednisone, folic acid,prilosec,prevacol,carafate,spironolactone,zofran,potassium,valgancyclovyr,multi vitamin,lasix,zaroxolyn
Other Information:Lindsay waited for a year before she got her second transplant we were in the hospital for 5 months during this time.She developed MANY complications(DIC,pancreatitis,blood clots, total kidney failure requiring 24hr continuous CVVHD dialysis and many more). We were told on several occasions they didnt know if she would make it.However she is doing much better and we look forward to each day. She is obsessed with dogs.Loves Sailor Moon and Power Puff Girls.
Residence:Houston,Texas USA
Child's Birthdate:10/2/90




ID:35
Child's Name:Marc
Child's Age:12
Parent(s) Name(s):Aaron&Rebecca
Type of Transplant:Kidney
Date of Transplant:12/12/00
Medical Center:Kosair Children's Hospital Lousville KY
Diagnosis:ESRD do to Puv's
Medications:Predisone,cellcept,cyclosporine,cytovene,myslex,norvasc, labetalol,bactrim,iron,zantac&multi-vitamin
Other Information:Marc was born with Puv's they where not found till he was almost 7 years old I don,t think they would have found them at that time but he had been playing football with his uncle Mark and he got knocked down and when he hit the ground it coused the Puv's to rip and so he was bleeding when he would pee. They tolled us had this not have happend he might have died befor they ever found out. He has done real well though all this and only had to be on dialysis for 4 mounths before he got his tx.
Residence:Jeffersonville Indiana USA
Child's Birthdate:12/14/88




ID:36
Child's Name:Matthew
Child's Age:3
Parent(s) Name(s):Darla & Mike
Type of Transplant:Kidney (living donor dad)
Date of Transplant:July 31, 2001
Medical Center:Rainbows Babies & Children
Diagnosis:Kidney Failure
Medications:neoral, cellcept, prednisolone, vasotec, lasix, metolazone, bactrim, zantac, epogen & iron
Other Information:Matthew was diagnosed with nephrotic syndrome at 15 months old and it progressed to focal segmental glomerulosclerosis in less than 7 months and then into end stage renal disease which he has been on dialysis since January of 2000.
Residence:Ohio
Child's Birthdate:10-31-97




ID:37
Child's Name:Seth
Child's Age:8
Parent(s) Name(s):Richard & Karen
Type of Transplant:Heart
Date of Transplant:July 10, 1998
Medical Center:Mott Children's Hospital, University of Michigan Medical Center, Ann Arbor, Michigan
Diagnosis:Dilated Cardiomyopathy r/t myocarditis
Medications:Cyclosporine,prednisone,imuran,pravachol
Other Information:Seth was so very ill prior to his transplant, ECMO dependent with very little cardiac function left. He has done SO well since being transplanted, no rejection whatsoever. He is our bundle of energy; the happiest little boy we know! Thank heaven for organ donors!!!
Residence:Michigan
Child's Birthdate:April 14, 1992




ID:38
Child's Name:Kelsey
Child's Age:7 1/2
Parent(s) Name(s):Stephen & Brenda
Type of Transplant:Heart
Date of Transplant:September 1993
Medical Center:Children's National Medical Center in Washington, DC
Diagnosis:Congential Heart Disease
Medications:Neoral capsules, (3) @ 25 mg each. twice a day. Temporarily, is on Norvasc (high blood pressure) 1 a day.
Other Information:Kelsey was diagnosed with Congential heart disease, when I (Brenda) was 25 weeks pregnant. She went on the ht tx list the day she was born. She received her new heart at 6 weeks old. From a beautiful baby named Megan. Megan passed from a terrible childhood disease called SIDS (Sudden Infant Death Syndrome)at only 9 weeks old. Kelsey met her donor family when she was 4 years old. Kelsey has participated in many kinds of transplant awareness functions. She represented the state of WV for the First FAmily Pledge. And participated in the US tx olympics, held in 2000 in Disney. We had Kelsey and Megans picture done, and if you would like to see it, please go to the website http://www.portraitladies.com and click on Megan/Kelsey. She recently experienced a terrible side effect from her Prograf, which was causing her to have Short Term memory loss. Kelsey is currently preparing for her First Communion, and very excited for it. If anyone would love to email us, please do...Also, we have AOL instant messenger chat, and our buddy name is bmatsinwv, feel free to add us to your list, we would love to chat with other families with transplants. Or if there is anyone that would like any experiences that we had to go through to prepare and during her tx, we are there for support for that too. Please don't hesitate...:) We're looking foward to getting to know everyone on this new terrific website!!!!
Residence:Inwood, WV USA
Child's Birthdate:July 26, 1993




ID:39
Child's Name:Amy
Child's Age:16
Parent(s) Name(s):Sue Davis & Doug Davis
Type of Transplant:Liver
Date of Transplant:4/25/97 10/24/97
Medical Center:University of Michigans Mott Childrens Hospital
Diagnosis:will need a 3rd TX in time
Medications:Soudium Bi carb , Cyclo , Bactrim, asprin , actigall , One@ day
Other Information:she got LPD in her first liver now 2nd liver the bile ducts went closed never reoped so she has 2 PTC drain tubes that help this liver to work till she gets sick enough to be listed for a 3rd liver Tx With the tubes in place she has to have them changed every month in 4 years she has been thru 109 surgerys / tube change / surgical procesures She is so brave and deals with it very well She has made honor roll in High School . She inspires everyone she touches . She is my hero !
Residence:Ypsilanti, Michigan USA
Child's Birthdate:7/11/84




ID:40
Child's Name:Tasha
Child's Age:9
Parent(s) Name(s):Sean and Tammy Sollars
Type of Transplant:Heart
Date of Transplant:March 21,2001
Medical Center:North Carolina Baptist Medical Center
Diagnosis:Dialated Cardiomyopathy, Heart Failure
Medications:Neoral, Immuran, Prednisone, Gancyclovir, Cardizem, Vasotec, Bactrim, Nystatin
Other Information:Tasha was the healthiest of my five children.She never had to go to the doctor for anything except once for seasonal allergies. She had complained of abdominal tenderness and had gotten sick at a sleep over. I took her to the local hospital thinking maybe it was appendicitis at the worst. The surgeon wanted a chest x-ray and found that she had a huge heart and was in heart failure. That was July 22, 2000. In less than one year her condition deteriorated and she was listed March 16,2000 after multiple hospitalizations and insertion of a Broviak catheter and receiving continous Milrinone IV therapy at home.She was blessed with receiving her new heart without a blood transfusion and has been doing wonderful.She has had two heart catheterizations and no sign of rejection. She is now running and playing and riding her bike. She is really looking forward to going to school since she has been out since December. Thank God for the talented people to helped save my daughters life and the unselfish generosity of the parents of the donor child.
Residence:Elkin, Surry County , North Carolina
Child's Birthdate:July 21, 1991




ID:41
Child's Name:Adelle
Child's Age:16
Parent(s) Name(s):Delwyn & Bryce
Type of Transplant:Kidney
Date of Transplant:28 June 2000
Medical Center:Starship Childrens Hospital, Auckland
Diagnosis:FSGS
Medications:Prednisone Micophenylate Cyclosporin
Other Information:Immediate recurrence of FSGS in transplant. Proteinuria presently kept under control by weekly plasma-pheresis.
Residence:New Zealand
Child's Birthdate:3 June 1985




ID:42
Child's Name:Lindsey
Child's Age:2
Parent(s) Name(s):Grandmother-Kim Collins
Type of Transplant:Kidney
Date of Transplant:?
Medical Center:UK Medical Center-Lexington KY
Diagnosis:multicystic kidney
Medications:growth hormone,blood pressure, calcium, zantac, others
Other Information:Lindsey is very small, she has only grown 11 inches since birth. She will have a transplant sometime this summer.
Residence:Berea, KY
Child's Birthdate:6/22/99




ID:43
Child's Name:Abby
Child's Age:5
Parent(s) Name(s):Julie and David
Type of Transplant:Kidney (living related -mom)
Date of Transplant:September 30, 1997
Medical Center:UCLA
Diagnosis:bilateral multicystic dysplasia
Medications:neoral(40mg TID), cellcept/MMF(100mg BID), prednisone (1.5mg alterante days);pepsid (10mg BID); niferex/iron (150mg daily); zyrtec (2.5mg daily), multivitamin with fluoride.
Other Information:Born at 35 week gestation and immediately transported to UCLA. Original diagnosis ARPKD changed after cystic kidneys were removed and examined by many pathologists. Now has a 17-month-old brother, Adam, who is healthy. She is incredibly bright and funny! Definitely hates labs!
Residence:Fresno, CA USA
Child's Birthdate:02-21-96




ID:44
Child's Name:Sean
Child's Age:2
Parent(s) Name(s):Mark and Laurie
Type of Transplant:kidney, living related (dad)
Date of Transplant:soon
Medical Center:University of Iowa OR Fairfield University of Minnesota
Diagnosis:Multicystic kidneys and blocked ureters since birth, born with no amniotic fluid. Also has some failure-to-thrive and growth issues.
Medications:Only four!! Epogen and Nutropin (growth hormone) injections and Feostat (an iron supplement) and Poly-Vi-Sol.
Other Information:An older brother, Jacob, 4 1/2 Sean started PD at 10 days old, stopped at five months old, his ureter was fixed on the left left (gave up on the right side) at 7 months old (just had a hole in his back until then), now his creatinine is stable around 2.3. He had stomach reflux for 18 months, NG tube for first 12 months, now has a g-tube. He still doesn't eat any solids; he likes to spit them out. We had to wait until he was 10 kilos, and now we're looking forward to transplanting!
Residence:Cedar Rapids, IA, USA
Child's Birthdate:May 21, 1999




ID:45
Child's Name:Dalton
Child's Age:10
Parent(s) Name(s):Shannon
Type of Transplant:Kidney
Date of Transplant:April 9,1996
Medical Center:Florida Hospital
Diagnosis:blockage between kidneys and bladder
Medications:Prograf 2mg. twice a day Prednisone 5mg. every other day Azathriopine once a day Sodium BiCarbonate twice a day Sulfatrim once a day
Other Information:Dalton was diagnosed while I was pregnant. There was no amniotic fluid. No wonder it hurt so bad when he would move.They gave me a c-section at 31 weeks of pregnancy. He was 3lbs. and 15 inches long. He was beautiful. His first surgery was to bring the bladder to the surface so he could urinate. He came home from the hospital 2 and a half months later but had to be put back in a month later. This time he was their for 3 months and they finally put him on dialysis. He came home on peritonal dialysis. It was not an easy road. I can't count how many surgeries and hospital stays we had but he was a strong little boy. He was fortunate and was only on the transplant list 19 days. I wasn't unable to give him a kidney. Now he has been doing fine. He is in the 4th grade and gets into trouble like all little boys.
Residence:ST.Cloud, FL.
Child's Birthdate:April 11,1991




ID:46
Child's Name:Isaiah
Child's Age:14
Parent(s) Name(s):Yolanda Wicks
Type of Transplant:Kidney
Date of Transplant:unknown
Medical Center:Rainbow's Babies and Childrens of Cleveland
Diagnosis:End Stage Renal Disease
Medications:Bicitra, Fer-in-sol, Calcium Carbonate, Rocaltrol, Ditropan, Miralax, Trazodone, Procrit Injections, Humatrope Injections, Nephrocaps
Other Information:My son will be having a transplant in the near future. For the moment, I have decided to wait on the actual operation because I feel my son is not pshychologically, emotionally or mentally ready for the responsibility that he would have to take on. At the present time, he is doing quite well. He just put on four pounds in one month and grew a few centimeters. The growth hormone is really helping him in every aspect. He also has urine/bowel incontinence which can be trying at times. I also have a 22 month old son and am a single parent. Let's just say, it can get overwhelming at times. I have a nurse who stays with us during the week at night to monitor the Home Choice Dialysis machine. Unfortunately, I do not have anyone helping with much of anything. I do everything on my own and it gets frustrating. I really don't have anyone to talk to. People seem to shy away from all the "baggage" I carry.
Residence:Lorain, Ohio USA
Child's Birthdate:July 31, 1987




ID:49
Child's Name:Anthony "Munchie"
Child's Age:6mo
Parent(s) Name(s):Katie and Gabe
Type of Transplant:Liver Transplant
Date of Transplant:Listed 10/9/01, Status 2B (still waiting as of 11/19/01)
Medical Center:Shands Childrens Hospital, Gainesville, FL
Diagnosis:Biliary Atresia
Medications:Actigall, Aldactone, Bactrim, ADEK, Vitamin K, and Lasix
Other Information:Munchie was diagnosed with Biliary Atresia at 4 wks old. They had done many tests but could not come up with a reason for his high bilirubin levels. He was not presenting with the classic signs of BA. They eventually did a HIDA Scan and Liver Biopsy which were both inconclusive so that left exploratory surgery. The surgeon found that he had no biliary system in his liver and that cirrhosis had already started to set in. They did the kasai right then and there, and that was on 6/21/01. Unfortunately the kasai failed and he slowly started developing many of the classic symptoms. We went to Shands in Gainesville for his Tx evaluation and we were officially listed status 2B on 10/9/01; His tummy is now very large, they have not tapped him yet, however I see it coming as the lasix and aldactone just aren't keeping the fluids down and he is starting to have a hard time breathing. Since his tummy is so big he doesnt eat as much so they put an NG tube in. It goes up his nose and to his stomach. We pump in about 1oz of formula an hour overnight so that he eats as much as possible. They want him to try to gain more weight before the surgery if possible. We are now just waiting for our gift of life!! We hope it comes soon while our little Munchie is still relatively healthy and strong.
Residence:Clearwater, FL
Child's Birthdate:5/22/2001




ID:50
Child's Name:Travis
Child's Age:15
Parent(s) Name(s):J.J.& Vallarie
Type of Transplant:Liver
Date of Transplant:9/11/01
Medical Center:MUSC
Diagnosis:BA
Medications:Prograf,Magace,Clonidine(BP),Protonix(reflux)
Other Information:-
Residence:South Carolina
Child's Birthdate:4/11/1986




ID:51
Child's Name:Bry-anna
Child's Age:9
Parent(s) Name(s):David and Diane Brice
Type of Transplant:kidney
Date of Transplant:n/a
Medical Center:Boston Childrens
Diagnosis:end stage reneal disease
Medications:Labetalol, dht, minoxadil, nephedipine, epo, sodium bicar, multi vit., renal gel, iron,
Other Information:very hypertensive, ill alot, frequent fluid gain, in need, has been on peri. dialysis for almost 2 years now.
Residence:Limington, Maine, United States
Child's Birthdate:3/5/1992




ID:52
Child's Name:Jalon
Child's Age:1
Parent(s) Name(s):James & Kori
Type of Transplant:none yet
Date of Transplant:-
Medical Center:Childrens Hospital
Diagnosis:Prune Belly Syndrome
Medications:Bicitra,Procit,Amoxicillan, Katexolate, Iron, Peri-Colace
Other Information:Jalon was dignosed when I was three months pregnant, they instructed us the he wouldnt survive past 20 weeks and that we should terminate the pregnancy. Needless to say he made it here! He has the prune belly syndrome, with severe reflux, we are in the process of determining the type of surgery is needed. His creatine has been steady at 1.0-1.1, his BUN has been elevating, and is now at 62. No plans for a transplant.
Residence:Bowie, MD
Child's Birthdate:1/30/01




ID:53
Child's Name:Martin
Child's Age:16 months
Parent(s) Name(s):Joni
Type of Transplant:Kidney
Date of Transplant:ASAP
Medical Center:Doernbecher Children's Hospital in Portland, Oregon
Diagnosis:PUV's
Medications:Bicitra, Iberet, Fluoride, Ferinsol, Procrit
Other Information:Martin was born with end-stage renal disease needing dialysis right from birth. He ended up getting peritonitis while in the hospital causing his catheter to have to come out. While his catheter was out his labs actually improved allowing him to go with any treatment until 9 months of age, when he needed a PD catheter placed again along with unblocking his valves, closing his vesicostimy, and bringing down one of his testicles. After that major surgery he ended up getting a hernia which caused another surgery and time where we couldn't use the catheter, causing that catheter to kind of dry up. So that catheter had to come out and have another one put in. We used that catheter successly until this past December when he got a horrible peritonitis one that was just an unfortunate thing, something that I couldn't have prevented. His peritonitis was labeled as pseudomonous. Again his catheter had to come out. And he has been off of dialysis ever since for almost two months. His labs have not been good but ok, so right now they are trying to rush the transplant workup so that he can just go to a transplant instead of having another catheter and chance getting another infection.
Residence:Hillsboro, Oregon, United States
Child's Birthdate:9-25-2000




ID:76
Child's Name:Felix
Child's Age:2 1/2
Parent(s) Name(s):Jan and KT
Type of Transplant:kidney
Date of Transplant:08/31/01
Medical Center:UC Davis Med. Center, Sacramento, CA
Diagnosis:PUV's, Bilateral Renal Dysplasia
Medications:Prograf, Cellcept, Bactrim, Prednisone,Norvasc,Provochol
Other Information:Felix was on Dialysis for about 8 months prior to transplant. He still has a vesicostomy and will need bladder surgery in a few more years. Since surgery he has started to eat well and is quickly catching up developmentally. He is not yet on the height/weight charts and he continues to have some developmental delays. He has mild cerebral palsy in addition to the kidney issues. Overall he is doing great and we are thrilled!!
Residence:Grass Valley, CA USA
Child's Birthdate:01/08/2000




ID:77
Child's Name:Kyle
Child's Age:3
Parent(s) Name(s):Shawn and Mike
Type of Transplant:liver
Date of Transplant:December 19, 2000
Medical Center:Children's Healthcare of Atlanta
Diagnosis:Biliary Atresia
Medications:Neoral and Norvasc
Other Information:Kyle was born on September 13, 1999, and was diagnosed with biliary atresia at 8 weeks. He had the Kasai surgery on November 29, 1999. He had significant portal hypertension even before his Kasai surgery, which enlarged his spleen and caused internal bleeding. After the Kasai he had many complications, including pneumonia with a collapsed left lung. He was hospitalized for his first Thanksgiving, Christmas, and New Years. Although he stabilized and began to grow, the damage had been done and his liver disease progressed to cirrhosis. He was listed for transplant in January 2000 and we immediately started living donor testing. I was refused as a living donor even before he was officially listed. I have polycystic kidney disease and couldn't donate. One by one, other family members were also ruled out. We had a pager and waited for the call, but months went by with no call. In November 2000, Kyle's Aunt Lyn was tested to see if she would be a match. Lyn is my brother's wife and is not a blood relative, but when my brother was ruled out as a donor, she volunteered to be tested. She was a match and finally on December 19, 2000, Kyle got his new liver -- a gift of love from his aunt. During the 5 months before transplant, Kyle had almost constant infections and IV poles were a regular sight in our home. He had MANY antibiotics and other meds. He had internal bleeding for 9 months before transplant. Five days after transplant, Kyle was walking around the ICU with no IVs and no internal bleeding. Today, Kyle is 3 years old. He loves to play outside and ride in the car. He's very active and healthy. He likes anything with wheels and will play (and sing) for hours. He's already had 3 new stitches in his head for falling outside. He likes turning the lights on and off, and flushing things down the toilet. To newcomers he is a normal little boy who doesn't look like he's ever been sick. All his liver numbers are in the normal range. We felt very alone for much of the time that Kyle was sick as we didn't have a computer and we didn't know anyone else who had biliary atresia -- or any other liver disease. We now have a happy, healthy little boy and a tremendous network of new friends because of his illness. I am glad to have the chance to tell his story!
Residence:Alabama
Child's Birthdate:September 13, 1999




ID:78
Child's Name:Marisa
Child's Age:25
Parent(s) Name(s):Myself
Type of Transplant:LIVER
Date of Transplant:5/1/88
Medical Center:Fairview University Medical Center
Diagnosis:Biliary Atresia
Medications:Prograf, magnesium, bactrim, and penicillin
Other Information:I was born with BA in 76 and had my kasai in early 77. It worked until I was 11. I had a splenectomy due to a very enlarged spleen a week later i wasin liver failure in the PICU. I was trasnferred from teh children's hospital to Fairview to be listed and wait for my new liver. I waited in the hospital and was kept alive by IV's. I couldn't eat or drink because of severe bleeding. After 3 months I got my new liver! Any questions feel free to email. I am very invovled in teh liver and transplant community.:)
Residence:Minnesota
Child's Birthdate:12/21/76




ID:79
Child's Name:Joseph
Child's Age:3
Parent(s) Name(s):Laura Guy
Type of Transplant:kidney
Date of Transplant:October 16,2001
Medical Center:Mott Childrens Hospital
Diagnosis:End Stage Renal Disease
Medications:Tacrolimus 0.5 mg /ml 2 x day Cellcept 200 mg /ml 2 x a day Isradipine 1 mg/ml 2 x day Propranolol 8 mg /ml 2 x day Zantac 15 mg/ml 2 x a day Sulfatrim 200-40-5 bedtime Niferex 100 mg/5ml 2 x a day Neocate plus 1 with addatives -soduim bicarb Prednisone 5 mg/ml 2 x a day
Other Information:Diagnosis, e.s.r.d Bilateral inguinal hernias,Renal hypertension ,Gastroesophageal reflux,history of urinoma following transplant primary epstein-barr viral infection also C.M.V Bladder dysfunction with history of acute post renal failure Post Urethral Valves,Bilateral native nephrectomies with repair of kidney reflux,bladder augmentation,small pieace of small intestion used to make bladder bigger.also appendix attached to bladder,through belly button,called mitrofanoff,used to cath,joe joe does not urinate on his own.also has a history of pseudomonas, also a 6 french infuse a port,into left external jugular,
Residence:Toledo ,Ohio
Child's Birthdate:12-25-1999




ID:80
Child's Name:Alicia
Child's Age:10
Parent(s) Name(s):Patti & Jim
Type of Transplant:Kidney
Date of Transplant:11/800
Medical Center:Children's Hopsital of Philadelphia
Diagnosis:Crossed fused malrotated etopic kidneys
Medications:Prednisone 9mg 4x weekly, Prograf 3.5mg Bid, Cellcept 250mg Bid,Zantac 75mg daily,Lipitor 10 mg daily,Zyretec 10 mg daily, Pulmicort 2 puff Bid, Albuterol 2 puff daily.
Other Information:-
Residence:Philadelphia, Pa USA
Child's Birthdate:10/18/92




ID:81
Child's Name:Christina
Child's Age:9
Parent(s) Name(s):Lori McReynolds
Type of Transplant:Lung
Date of Transplant:1/23/01
Medical Center:St Louis Childrens Hospital
Diagnosis:pulmonary hypertension
Medications:Cyclo, Imuran, Predisone, Prilosec, Zestril, Diamox (sp?), iron, calcium, mag ox, vit D, IVIG, and more
Other Information:-
Residence:Neosho, MO USA
Child's Birthdate:4/13/93




ID:82
Child's Name:Joel
Child's Age:3
Parent(s) Name(s):Trent and Denise
Type of Transplant:Kidney ( Living related donor)
Date of Transplant:November 21, 2001
Medical Center:IWK Health Centre Halifax Nova Scotia Canada
Diagnosis:Congenital Nephrotic Syndrome
Medications:Neoral 75mg TID; Immuran 25mg OD; Prednisone 12.5mg Q 2nd day; Vitamin D .25mcg OD; Magnesium 35mg TID; Synthroid 25mcg OD ; Monopril 5 mg OD; Acyclovir 50 mg TID; Iron 30 mg BID; Joules Soln 10 mls BID
Other Information:Joel was treated until the day of his transplant with Albumin infusions . He always had kidney function and never had to rely on Dialysis .His Dr treated him with Captoril and Indocid (the side effects of both of these is that they both lower your kidney function) so they used thiese to slow his kidneys down to where they still functioned but they were somewhat able to slow down the massive loss of protien . Up until transplant Joel also had an AT III deficency and therefore his blood clotted too quickly so he rec'd lovenox (heparin) injections twice a day and because of his low hemaglobin he rec'd EPO injections twice a week. Joel is doing incredibly well since his transplant he did have a mild rejection at 6 weeks post transplant but they were able to treat him with steroids and able to reverse the rejection. I have a son who will show you his "line" where his "new kidney" is and it isn't until then that ppl know he was at one time a very sick little boy . We hope his new kidney ( given to him by mom) will last a very long time but dad is a potetial donor as he matched as well . If anyone would like to chat I am very open and hey feel free to contact us trentanddenise@eastlink.ca I hope that all is well with everyone and their children
Residence:Pictou, Nova Scotia Canada
Child's Birthdate:September 14, 1999




ID:83
Child's Name:Matthew
Child's Age:11
Parent(s) Name(s):Gary and Vonya
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:VATER
Medications:Ditropan XL 10mg,Methanimine,Prevacid.
Other Information:Matt was born with VATER's,a High Imperfrated anus so he has a colostomy, Micro Urethra so he has a vesicostomy in his belly button. He also has a mucas fistula. Matt has had around 30 surgeries. But at this point is surgery and UTI free for a little over 2 years..YAHOO
Residence:Nebraska, USA
Child's Birthdate:08/17/1992




ID:84
Child's Name:KJ
Child's Age:6 as of no
Parent(s) Name(s):JS and Me
Type of Transplant:Kidney transplant may required in the future
Date of Transplant:-
Medical Center:LIJ, and St.Charles Hospital ,NY
Diagnosis:Bilateral hydronephrosis/hydroureter
Medications:Ditropan XL 15 Mg, Vasotec(Enalapril 2,5 mg ) ,was on bicitra, epogen earlier on. Vitamin E 400 Units , Tums 550 Mg,iron
Other Information:KJ was born in 1997 9lbs and 14 OZ. At age 5 was diagnozed with PUV after he had twice internal hematuria (blood and pain while urinating). Grade IV hydronephrosis on left kidney grade II/III on right side. Hydroureteres as well. Bladder wall is thick and diverticula on left side.Has developed hypertension as well. Had cystoscopy in 2002 and are following up with RUS and blood work.
Residence:LI , NY
Child's Birthdate:1997,March




ID:85
Child's Name:KJ
Child's Age:6 as 03
Parent(s) Name(s):JS and Me
Type of Transplant:Kidney transplant may required in the future
Date of Transplant:-
Medical Center:LIJ, and St.Charles Hospital ,NY
Diagnosis:Bilateral hydronephrosis/hydroureter
Medications:Ditropan XL 15 Mg, Vasotec(Enalapril 2,5 mg ) ,was on bicitra, epogen earlier on. Vitamin E 400 Units , Tums 550 Mg,iron
Other Information:KJ was born in 1997 9lbs and 14 OZ. At age 5 was diagnozed with PUV after he had twice internal hematuria (blood and pain while urinating). Grade IV hydronephrosis on left kidney grade II/III on right side. Hydroureteres as well. Bladder wall is thick and diverticula on left side.Has developed hypertension as well. Had cystoscopy in 2002 and are following up with RUS and blood work.
Residence:LI , NY
Child's Birthdate:1997,March




ID:86
Child's Name:Kaitlyn
Child's Age:10 1/2 mon
Parent(s) Name(s):Kelly and Karl
Type of Transplant:Kidney in near future
Date of Transplant:possible Dec 2003
Medical Center:Stanford
Diagnosis:bilateral dysplastic kidneys
Medications:Sodium bicarbinate, iron, reglan, DHT
Other Information:Dx at 2 1/2 weeks, peritoneal diaysis catheter put in at 7 months but as not had to use it yet, has central line and NG tube. Born 5 1/2 weeks early, but no other problems that we know of.
Residence:Fair Oaks, CA, USA
Child's Birthdate:October 1, 2002




ID:87
Child's Name:Kaitelyn/ (Kaite)
Child's Age:9
Parent(s) Name(s):Bobby and Christa
Type of Transplant:heart
Date of Transplant:-
Medical Center:Columbia/Presbytarian Babies Hospital NYC,NY
Diagnosis:cardiomyopathy
Medications:-
Other Information:heart transplant at nine months of age
Residence:Mattydale,NY Usa
Child's Birthdate:8/25/94




ID:88
Child's Name:Daniel
Child's Age:12
Parent(s) Name(s):Margaret
Type of Transplant:Kidney
Date of Transplant:10/31/2000
Medical Center:St Barnabus
Diagnosis:reflux
Medications:Prograf, Prednisone, Bactrim, Lobetatol, and Procardia
Other Information:Living Donor transplant (Uncle). Side effect - High Blood Pressure
Residence:East Orange, NJ,USA
Child's Birthdate:03/29/91




ID:89
Child's Name:Bailey
Child's Age:4
Parent(s) Name(s):Mary Ann R. McCullough
Type of Transplant:Heart
Date of Transplant:4/18/00
Medical Center:Denver Childrens Hospital
Diagnosis:Hypo-Plastic Left Heart Syndrome
Medications:currently: Neoral
Other Information:Bailey is extremely outgoing and happy.
Residence:Denver, Colorado
Child's Birthdate:1/24/00




ID:90
Child's Name:Bryce
Child's Age:7
Parent(s) Name(s):Nic Bordelon
Type of Transplant:Kidney
Date of Transplant:August 18, 1998
Medical Center:Tulane Medical Center
Diagnosis:Diffuse Misangel Sclerosis
Medications:Neoral, Prelone, Immuran, Norvasc
Other Information:We would love to hear from you!
Residence:Greenwell Springs, LA
Child's Birthdate:January 21. 1997




ID:91
Child's Name:Johnathan
Child's Age:17mo.
Parent(s) Name(s):Vern & Jennifer
Type of Transplant:will need a heart
Date of Transplant:not yet
Medical Center:Childrens Hospital of Denver
Diagnosis:Dilated Cardiomypathy
Medications:Lasix(furosemide),Lanoxin (digoxin), Captopril, & Coenzyme Q
Other Information:We find out about johnathan heart diease when johnathan was 5mo. he stayed in the hospital for about 1mo. Was given medications, and they did a cariac catheterization to see the pressure in his heart and it was at a 20%. Months later he was put on a study medication witch is a beta-blocker. he was doing really good for a couple of months. Now one year later, the doctors are going to do a nother catheterization. If johnathan heart pressure is at a 25% or 28% Johnathan will need a heart transplant.
Residence:Westminster, CO.
Child's Birthdate:August 20 2002




ID:92
Child's Name:Erin
Child's Age:2
Parent(s) Name(s):Irene & Matt
Type of Transplant:Liver
Date of Transplant:4/14/02
Medical Center:Children's Hospital of Philadelphia
Diagnosis:Primary Hyperoxaluria Type 1
Medications:Prograf, Zantac, Norvasc, Labatelol
Other Information:Erin was born in kidney failure. PH1 is a kidney disease but the liver is the culprit(missing an enzyme). It is also autosomal recessive, so I am lucky my older 2 don't have it. We were facing a kidney/liver transplant but through the grace of God her kidney function came back. One year after transplant Erin suffered nephrotoxicity from the prograf. Today her kidney function is almost normal but the kidneys are damaged. So we are praying that we can keep them in good shape to avoid a kidney transplant.
Residence:Toms River, NJ
Child's Birthdate:June 6, 2001




ID:93
Child's Name:Alex
Child's Age:2 1/2
Parent(s) Name(s):Rhonda & Lars
Type of Transplant:Kidney
Date of Transplant:-
Medical Center:Dorenbeckers Childrens Hospital
Diagnosis:Bilateral Multicystic Dysplasyia
Medications:Sodium Bicarb, Vitamin D
Other Information:Alex had a ruff time when he was born, first at sacred heart hospital born at 34 weeks, stayed there for a week. Was clinical dead for 20 minutes when they brung him back, he had to much fluid in his lungs and it crushed his heart because he was layed on his side. After that he was sent to dorenbeckers hospital were he was diagnosed then the roller coaster has still been going on. He will have surgery on the March 1st for a g tube.Because he is to some to make it through the surgery.
Residence:Junction City, Ore
Child's Birthdate:9-10-01




ID:94
Child's Name:Amanda
Child's Age:9 years
Parent(s) Name(s):Tracey
Type of Transplant:Living Donor- Father
Date of Transplant:2-9-04
Medical Center:Lucile Packard Children's Hospital
Diagnosis:FSGS
Medications:Prograf, Cytoxin, Atenolol, Clonodine, Amlodipine, Slow-Fe, Neurontin, Nitrofurantoin, Pepcid, Asperin, Prednisone, Epogen,
Other Information:Diagnosed @ 7yrs with Minimal Change Disease. 6 Months later had both kidneys removed (full blown FSGS.) Non-responsive to any medications or treatments. Hemo dialysis then peritoneal dialysis, then hemo again. Attempted Steroid-Free transplant, FSGS returned day after kidney transplant. Now treated with Plasma phresis 2x a week, Prosorba Column A 1x week, with three month course of Cytoxin. Protein Creatin Ratio high and inconsistent. Amanda wears a Hepa Filter mask due to the extreme immunosuppression. Will decrease frquency of Phresis when course of Cytoxin finished. Odds are high of losing the new kidney at that point.
Residence:Carson City, NV USA
Child's Birthdate:8-9-94




ID:95
Child's Name:Daniel
Child's Age:8
Parent(s) Name(s):Phil & Marieta
Type of Transplant:Kidney (living non related donor step dad)
Date of Transplant:17/07/2001
Medical Center:Mater Childrens Hospital, Brisbane, Queensland, Australia
Diagnosis:Congenital Nephrotic Syndrome
Medications:Cyclosporin 1.1ml& 1.2ml, Cell Cept 250mg x2, Prednisone 5mg daily, Vitamin
Other Information:If you would like to email me at marieta@sutty.id.au Feel free. I would love to hear from other people. Daniel is 3 yrs post kidney transplant. Too much information to type in this little box.
Residence:Thornlands, Brisbane, Queensland, Australia
Child's Birthdate:18/10/1995




ID:96
Child's Name:Matthew
Child's Age:3 1/2 at O
Parent(s) Name(s):Jen Perkins and Mick Bell
Type of Transplant:Kidney
Date of Transplant:20/8/03
Medical Center:Royal Children's Hospital, Melbourne Australia
Diagnosis:bilateral dysplastic kidneys secondary to post urethral obstruction
Medications:Cellcept, Tritace (Ramipril), Tacrolimus, Bactrim.
Other Information:Matthew was born 8 weeks premature at Launceston General Hospital with 7% renal function. The urethral obstruction that was the cause of all this had partially cleared sometime between 16 and 20 weeks gestation, however the damage was already done. His ultrasounds always looked like one kidney had avoided any damage so we were hopeful of a happy ending. Matthew was fed by Nasal Gastric tube from birth until 5 months post transplant. Our only attempt to feed him normally resulted in a dramatic weight loss. His tenkoff catheter was put in at 5 months of age and due to a slight decrease in his creatinine levels we held off beginning dialysis until 5 months later. Matthew had a few hicups along the way, some were big and life threatening and scarier than the transplant. We constantly had problems with phosphates and potassium and Matthew had rickets and reflux and he had intolerance issues with his formula (Kindergen)but we made it and he is now happy, healthy and full of energy. Our job now is to try to kep him like that!
Residence:Launceston, Tasmania, Australia
Child's Birthdate:30/03/01




ID:97
Child's Name:Julie
Child's Age:9 months
Parent(s) Name(s):Ali and Kristie
Type of Transplant:Liver, stomach, small and large intestine, pancreas and sleen
Date of Transplant:waiting
Medical Center:University of Miami
Diagnosis:Hirschsprung's Disease
Medications:Procrit, Tpn (16 hours a day) Actigal
Other Information:Julie was born with Hirshsprungs Disease and has had three major operations on her intestines. She is totally dependent of Tpn/Il for her nutrition. She was in the hospital for the first 6 months of her life. She has been at home for the past 3 months. We are waiting for her transplant in Florida. After transplant, when Julie is better, we will return to Tennessee. She is doing very good at home. She is very happy and smiling all the day..She has two brothers back in Tennessee waiting for her.
Residence:Deerfield Beach, Florida(From Nashville, Tennessee, here in Florida until transplant)
Child's Birthdate:01/13/04




ID:98
Child's Name:Courtney
Child's Age:12
Parent(s) Name(s):Marcia Scott
Type of Transplant:kidney
Date of Transplant:June 4 2002
Medical Center:Penn State Hershey Medical Center
Diagnosis:FSGS
Medications:currently--prednisone, bactrim, niferex-forte, multi-vitamin
Other Information:Courtney was diagnosed at age 2 with nephrotic syndrome, could not be controlled, biopsy confirmed FSGS at age 4. Kidney failure at age 9. FSGS re-occurred in transplanted kidney but she had plasmaphresis and the the FSGS is in remission. She was on pograf but was stopped because she developed PTLD. Has been on prednisone only since January 2004. She is doing great.
Residence:York, PA United States
Child's Birthdate:November 1, 1991




ID:99
Child's Name:Destiny
Child's Age:5
Parent(s) Name(s):Jody and Christy Goss
Type of Transplant:Kidney
Date of Transplant:12-10-2004
Medical Center:UTMB Children's Hospital Galveston Texas
Diagnosis:ESRD secondary to Chronic Interstitial Nephritis
Medications:Prograf, Imuran, Zenopax, Valcyte, Prednisone, Nystitan, Magnesium Oxide, Norvasc, Pepcid, Bactrim
Other Information:We found out that Destiny had kidney failure on July 14, 2004 because the doctors were doing blood work to see if she was dehydrated. She was asymptomatic physically and we are very thankful that she didn't have to go on dialysis. We don't know what caused the kidney failure or when it started. We know that within 5 months our healthy little 5 yr old went from being healthy to having a transplant. Her story is on www.DestinysHope.com
Residence:Vidor, Texas, USA
Child's Birthdate:9-15-1999




ID:100
Child's Name:Dominic
Child's Age:9
Parent(s) Name(s):Michael & Angel
Type of Transplant:Kidney
Date of Transplant:2/12/2001
Medical Center:Cleveland Clinic Foundation
Diagnosis:Staph Infection, PUV, ESRD
Medications:Cellecept 1cc 2x/day, Prograf 10cc 2x/day, Bicetra 20cc 3x/day
Other Information:Peritoneal Dialysis for 4 1/2 years, Hemodialysis for 6 mos.
Residence:Akron, Ohio, U.S.A.
Child's Birthdate:12/17/95




ID:101
Child's Name:Dilruba
Child's Age:8
Parent(s) Name(s):Faik - Zeynep
Type of Transplant:Kidney
Date of Transplant:3/3/2004
Medical Center:University Hospital, Cleveland
Diagnosis:Diffuse Mesangial sclerosis
Medications:Cellcept, Zantac, Sodium Bicard, dapsone, Niferex, Prednisone, Prograf.
Other Information:Dilruba was born with kidney failure due to a genetic mutation. She had peritoal dialysis, then she got candida infection and she was put on hemo. In march 2004 she had transplant from her mom. Since then everything looks fine.
Residence:Cleveland, OH, USA
Child's Birthdate:2/27/1997




ID:102
Child's Name:Raiden
Child's Age:4 1/2
Parent(s) Name(s):Paul and Andrea
Type of Transplant:Heart
Date of Transplant:8/11/2000
Medical Center:U of Michigan-Mott's Women and Children's Hospital
Diagnosis:HLHS
Medications:Imuran and Sandimmune Cyclosporin
Other Information:Raiden is now 4 1/2 years out from his transplant and has had 3 biopsies all came back a "0". One hospitalization for Rotovirus and one for a blood clot in his heart after his biopsy and had his tonsils out.
Residence:Watertown, SD USA
Child's Birthdate:8/1/2000




ID:103
Child's Name:Eryn
Child's Age:4
Parent(s) Name(s):Tara and Thomas
Type of Transplant:Kidney
Date of Transplant:not yet scheduled
Medical Center:Arnold Palmer Hospital for Women and Children, Orlando, FL
Diagnosis:ESRD, Focal Segmental Glomularsclerosis, Nephrotic Syndrome dx on 10/01
Medications:BiCitra, NuIron, Calcitrol, Renalgel, Dialyvite, Lipitor, Epogen Alfa, Tums 1000mg, Blood Pressure medication, other
Other Information:Been on Peritoneal Dialysis since 6/2003. Went into congestive heart failure and respiratory failure on same date. Symptoms of Nephrotic Syndrome began 5 days after MMR vaccination at the age of 15 months. Looking for kidney donor, father has high blood pressure and mother not a match. Family members either not a match or not eligible due to health problems.
Residence:Melbourne, FL, United States
Child's Birthdate:07/31/2000




ID:104
Child's Name:zahira
Child's Age:-
Parent(s) Name(s):tammy and sean sollars
Type of Transplant:heart
Date of Transplant:3/21/2000
Medical Center:baptist
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:7/21/91




ID:105
Child's Name:Justice
Child's Age:3.5
Parent(s) Name(s):Alex and Sheryl
Type of Transplant:Living Donor Liver
Date of Transplant:6/3/02
Medical Center:Lucile Packard Children's Hospital at Stanford
Diagnosis:Biliary Atresia
Medications:NONE!!!!
Other Information:After a late diagnosis of biliary atresia, Justice had his Kasai at 9.5 weeks which ultimately failed. He received his gift of life from my hero, my friend Charity on June 3rd, 2002. Just four short months later Justice battled PTLD and proved to be a miracle boy once again. He is now thriving, with his new liver, on NO IMMUNOSUPPRESION. Hooray.
Residence:Beaverton ORE
Child's Birthdate:12/1/01




ID:107
Child's Name:Julie
Child's Age:17 months
Parent(s) Name(s):Kristie and Ali
Type of Transplant:Liver, Small and Large bowel, Pancreas, and Sleen
Date of Transplant:October 30, 2004
Medical Center:Jackson Medical Center, Miami. Florida
Diagnosis:Hirschsprung
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:108
Child's Name:MISTY
Child's Age:10
Parent(s) Name(s):MARY G
Type of Transplant:-
Date of Transplant:-
Medical Center:CHILDRENS HOSPITAL MILWAUKEE WIS
Diagnosis:GRADE 3AN 4
Medications:N/A RIGHT NOW
Other Information:MY CHILD HAS KIDNEY REFLUX IN BOTH AN BEEN TO CHILDRENS HOSPITAL OFF AN ON FOR 4YRS SHE IS 10 YRS OLD AN HAD SURGERY WHEN SHE WAS 9 YRS AN SHE HAS TO GO BACK TO CHILDENS HOSP. AGAIN CAUSE OF BLOOD IN URINE
Residence:OSHKOSH WINABAGOO WIS
Child's Birthdate:9-21-93




ID:109
Child's Name:Marshall
Child's Age:9
Parent(s) Name(s):Susan and Phil
Type of Transplant:Kidney
Date of Transplant:Unknown
Medical Center:UNC-CH
Diagnosis:ESRD
Medications:Nutropin GH, Arasnep, Ferrous Sulfate, Calcitrol
Other Information:We are looking for other families in the Raleigh area to get together with and share ideas, experiences, and concerns.
Residence:Raleigh, NC, USA
Child's Birthdate:5/23/96




ID:110
Child's Name:Jake
Child's Age:11
Parent(s) Name(s):Jeff and Jenny
Type of Transplant:Kidney
Date of Transplant:7/1/05
Medical Center:Fairview University Medical Center - Minnesota
Diagnosis:Juvenile Nephronothesis
Medications:Neoral 175mg 2X/day, Cellcept 500mg 2X/day, Norvasc, Ferrous Sulfate, Bactrim, Epogen injections, (Neupogen injections at times)
Other Information:I am very interested to hear from other parents in dealing with transplants and any post transplant issues. Our son has been in and out of the hospital with mystery fevers since transplant. We are very blessed to have such a wonderful medical facility so close to us.
Residence:WI
Child's Birthdate:7/13/94




ID:111
Child's Name:Sarah
Child's Age:3
Parent(s) Name(s):Marc & Kim DiCapua
Type of Transplant:Kidney
Date of Transplant:10-7-2004
Medical Center:Cincinnati Children's Hospital
Diagnosis:Diffuse Mesangial Sclerosis
Medications:Prograf, Prednisone, Immuran
Other Information:-
Residence:Avon Lake, OH USA
Child's Birthdate:04/16/2003




ID:112
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:113
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:114
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:115
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:116
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:117
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:118
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:119
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:120
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:121
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:122
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:123
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:124
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:125
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:126
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:127
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:128
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:129
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:130
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:131
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:132
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:133
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:134
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:135
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:136
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:137
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:138
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:139
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:140
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:141
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:142
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:143
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:144
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:145
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:146
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:147
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:148
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:149
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:150
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:151
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:152
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:153
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:154
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:155
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:156
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:157
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:158
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:159
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:160
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:161
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:162
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:163
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:164
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:165
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:166
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:167
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:168
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:169
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:170
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:171
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:172
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:173
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:174
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:175
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:176
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:177
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:178
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:179
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:180
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:181
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:182
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:183
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:184
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:185
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:186
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:187
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:188
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:189
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:190
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:191
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:192
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:193
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:194
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:195
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:196
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:197
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:198
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:199
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:200
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:201
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:202
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:203
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:204
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:205
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:206
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:207
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:208
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:209
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:210
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:211
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:212
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:213
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:214
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:215
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:216
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:217
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:218
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:219
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:220
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:221
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:222
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:223
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:224
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:225
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:226
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-




ID:227
Child's Name:-
Child's Age:-
Parent(s) Name(s):-
Type of Transplant:-
Date of Transplant:-
Medical Center:-
Diagnosis:-
Medications:-
Other Information:-
Residence:-
Child's Birthdate:-






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